Without going into too much detail, my 6 year old son has had serious metabolic and blood sugar problems since birth. Yesterday we saw our hospital consultant who told us that we now have to be referred to Great Ormond Street Hospital for the invasive tests that I didn't want to have to put him through. We were told that our local hospital could no longer manage his condition and the risk of serious complications when he becomes ill is now getting too high. I thought that we were doing OK in managing his condition ourselves, but our consultant does not agree.
I know that we are lucky in that he is generally healthy most of the time, but I'm so very scared that they just don't know what is wrong with him. It could be anything from simply a fast metabolism to a brain tumor and all sorts of things that I don't even want to think about.
I don't even know why I am writing on here - I'm at work and I feel that if I don't write it down and 'talk' to someone, then I'm going to just sit here and cry. I'm so worried and scared about what they are going to tell me. I always thought that Great Ormond Street was reserved for very sick children. So why is my son going there?
I know that we are lucky in that he is generally healthy most of the time, but I'm so very scared that they just don't know what is wrong with him. It could be anything from simply a fast metabolism to a brain tumor and all sorts of things that I don't even want to think about.
I don't even know why I am writing on here - I'm at work and I feel that if I don't write it down and 'talk' to someone, then I'm going to just sit here and cry. I'm so worried and scared about what they are going to tell me. I always thought that Great Ormond Street was reserved for very sick children. So why is my son going there?