@ Trewsers Sorry to hear about your husband. It's scary isn't it.
My OH has Cystic Fibrosis and wasn't expected to make eighteen months when born. He's still kicking about at 36 years old Although he has very low lung fuction and other complications (he can't digest food without tablets and his blood can clot for fun for example). He's baffled the medical profession for years, as he's so 'well' for someone with his condition in it's severity - he plays 5 aside football (admittedly with a team who essentially are his friends and don't care he can't run properly), cycles a bit and goes to the gym. When he was young he played national youth football and youth cricket for his county. He's forever arguing with the top consultants and surgeon in the country about how he doesn't need a lung transplant yet ... even they admit he's a freak of medicine.
If you were to see him on the pub on a Friday night, you'd be none the wiser (don't get me started on the abuse we've had on having a disabled car badge ...!) but he obviously does a lot of treatment, has good and not so good days and if we're unlucky he can be hospitalised for anything from a few weeks to months if he picks anything up!
I mean, his lungs literally grow their own bacteria and mould. We don't need any other bugs so are very careful - like I said, there's often more than people see initially.
My OH has Cystic Fibrosis and wasn't expected to make eighteen months when born. He's still kicking about at 36 years old Although he has very low lung fuction and other complications (he can't digest food without tablets and his blood can clot for fun for example). He's baffled the medical profession for years, as he's so 'well' for someone with his condition in it's severity - he plays 5 aside football (admittedly with a team who essentially are his friends and don't care he can't run properly), cycles a bit and goes to the gym. When he was young he played national youth football and youth cricket for his county. He's forever arguing with the top consultants and surgeon in the country about how he doesn't need a lung transplant yet ... even they admit he's a freak of medicine.
If you were to see him on the pub on a Friday night, you'd be none the wiser (don't get me started on the abuse we've had on having a disabled car badge ...!) but he obviously does a lot of treatment, has good and not so good days and if we're unlucky he can be hospitalised for anything from a few weeks to months if he picks anything up!
I mean, his lungs literally grow their own bacteria and mould. We don't need any other bugs so are very careful - like I said, there's often more than people see initially.